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Welcome to MyCare Card development site
In most emergency situations, health professionals rely on patients to provide information about their medical history. However, in some cases patients might not be able to communicate this information, and in most countries, including the UK an on-line integrated patient record system has not been adopted. Therefore, in order to address this issue the on-going project MyCare Card abbreviated as MyC2 has been established. The aim of this project is to design, implement and evaluate a prototype patient held electronic health record card.
To control the project's complexity, MyCare health record card development was split in two sub-projects: MyCare Card – medical records storage media device; and MyCare Card Browser – GUI and database software which allows card owners and health professionals to view and edit, where appropriate, information stored on the MyCare Card.
MyCare Card Browser binaries and source code can be found on the download page.
This site is the place to follow along with the development of MyCare Card project. Changes can be tracked in the timeline section of this site.
See our publications for the list of references, related to MyC2.
MyC2 project overview
In many areas of health care in the UK, particularly emergency care, health professionals rely on patients to provide information about their medical history. However, reliable information may be difficult to acquire from patients who are unwell, confused, or have communication difficulties. It has been suggested that patients taking responsibility for their records would be able to manage their health better by keeping continually updated and informed of all changes and provide means of security and safety. See " What roles for the patient in patient safety research?" article, for example.
An electronic form of patient held records was successfully trialled in the UK, between 1989-1992. In this, over 13,000 patients were provided with smart cards containing health information that only they and health professionals treating them were able to access. The results showed that the majority of participants were in favor of having the cards. However, their use was not continued, as the technology was not sufficiently mature at this time.
Few studies have identified the design requirements for patient held health records in the UK, such as the preferred form of device, methods of data entry, access rights or the information content, and compared these requirements to those of health professionals. However, surveys carried out at Coventry University identified such requirements and these were used in this project to produce a prototype system (media cards and access software) which is being continuously evaluated and refactored.
MyCare project aims to design and implement a system, which will be intuitive and transparent for users of almost any computer literacy. Therefore, from the beginning, the project development had to be focused on the end user interface and not on the internal program structure or the database formats.